| Endocrinology | 
                           
                           Tollefsen | 
                           
                           Genentech, Inc. | 
                           
                           PMS II Study | 
                           
                        
                        
                           
                           | Dermatology | 
                           
                           Siegfried | 
                           
                           Amgen | 
                           
                           Evaluate Safety of Etanercept in Pediatric Patients with Plaque Psoriasis | 
                           
                        
                        
                           
                           | Pulmonary | 
                           
                           Noyes | 
                           
                           Seattle Children's Hospital | 
                           
                           EPIC Observational Study | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Fletcher Allen | 
                           
                           Phase II Research Study of Nifurtimox | 
                           
                        
                        
                           
                           | Dermatology | 
                           
                           Siegfried | 
                           
                           Pierre Fabre | 
                           
                           Infantile Hemangiomas Study | 
                           
                        
                        
                           
                           | Endocrinology | 
                           
                           Tollefsen | 
                           
                           Eli Lilly | 
                           
                           The Genetics and Neuroendocrinology of Short Stature International Study | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Puetz | 
                           
                           Biogen Idec Inc. | 
                           
                           An Open-Label, Multicenter Evaluation of Safety, BIIB031 | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Van Andel Institute | 
                           
                           NMRTC001 | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           University of Vermont | 
                           
                           A Phase1 Trial of TPI 287 | 
                           
                        
                        
                           
                           | Genetics | 
                           
                           Braddock | 
                           
                           University of California San Diego | 
                           
                           OTIS Autoimmune Diseases in Pregnancy Project | 
                           
                        
                        
                           
                           | Gastro | 
                           
                           Teckman | 
                           
                           Genentech, Inc. | 
                           
                           A phase IIIb parallel group, open label study of pegylated interferon | 
                           
                        
                        
                           
                           | Pulmonary | 
                           
                           Albers | 
                           
                           Hologic | 
                           
                           A Multi-Center Cystic Fibrosis Blood Sample Collection Study | 
                           
                        
                        
                           
                           | Pulmonary | 
                           
                           Albers | 
                           
                           Kalobios Pharmaceuticals | 
                           
                           Study of KB001 A in Subjects with Cystic Fibrosis Infected with Pseudomonas aeruginosa | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Children's Hospital of Philadelphia | 
                           
                           COG industry Work Order | 
                           
                        
                        
                           
                           | Pulmonary | 
                           
                           Albers | 
                           
                           Gilead Sciences | 
                           
                           Regimen of Inhaled Antibiotics for the Treatment of Chronic Pulmonary Pseudomonas
                              in Subjects with Cystic Fibrosis | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Children's Hospital of Philadelphia | 
                           
                           A Phase I/II Trial of TPI 287 in Patients with Refractory or Recurrent Neuroblastoma
                              or Medulloblastoma NMTRC004 | 
                           
                        
                        
                           
                           | Allergy | 
                           
                           Knutsen | 
                           
                           Baxter Healthcare Corp | 
                           
                           Safety, Tolerability, and Pharmacokinetics in Subjects with Primary Immunodeficiency
                              Diseases | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Puetz | 
                           
                           Biogen Idec Inc. | 
                           
                           Prevention and Treatment of Bleeding Episodes in Previously Treated Subjects With
                              Hemophilia A | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Janssen Research Foundation | 
                           
                           Abciximab (ReoProR) as a Therapeutic Intervention for Sickle Cell Vaso-Occlusive Pain
                              Crisis | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Spectrum Health Hospitals | 
                           
                           NMTRC 008 A Feasibility Trial using Molecular-Guided Therapy for the Treatment of
                              Patients | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Eli Lilly | 
                           
                           Prasugrel and Placebo in Pediatric Patients with Sickle Cell Disease | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Van Andel Institute | 
                           
                           Neuroblastoma in Remission - Protocol Number NMTRC 003 | 
                           
                        
                        
                           
                           | Pulmonary | 
                           
                           Albers | 
                           
                           Novartis Pharmaceuticals | 
                           
                           Tobramycin Inhalation Powder (TIP) administered once daily in patients with cystic
                              fibrosis | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Puetz | 
                           
                           American Thrombosis and Hemostasis Network | 
                           
                           My Life, Our Future: A Hemophilia Genotyping Initiative Data and Sample Registry Repository | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Children's Hospital of Philadelphia | 
                           
                           COG Industry Work Order: FP17305 SUB102 02 GLENNON SANOFI AALL1131 WO | 
                           
                        
                        
                           
                           | Gastro | 
                           
                           Teckman | 
                           
                           Alnylam - Alpha 1 | 
                           
                           Natural History Study | 
                           
                        
                        
                           
                           | Gastro | 
                           
                           Teckman | 
                           
                           Gilead Sciences | 
                           
                           Gilead US 334-1112 | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Ferguson | 
                           
                           Van Andel Institute | 
                           
                           NMTRC 009 Molecular Guided therapy for the treatment of refractory cancers | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Puetz | 
                           
                           Biogen Idec Inc. | 
                           
                           Biogen 998HB303 | 
                           
                        
                        
                           
                           | Endocrinology | 
                           
                           Siska | 
                           
                           Novo Nordisk | 
                           
                           Novo Nordisk - NN2211-3659 Ellipse | 
                           
                        
                        
                           
                           | Allergy | 
                           
                           Knutsen | 
                           
                           Hoffman LaRoche | 
                           
                           Acoustics - WB28182 | 
                           
                        
                        
                           
                           | Endocrinology | 
                           
                           Myers | 
                           
                           Zafgen | 
                           
                           Zafgen ZAF 311 Trial of ZGN 440 Beloranib | 
                           
                        
                        
                           
                           | Gastro | 
                           
                           Teckman | 
                           
                           Gilead Sciences | 
                           
                           Gilead US 334-1116 Ledipasvir/Sofosbuvir tx for Hep C in Children | 
                           
                        
                        
                           
                           | Hematology | 
                           
                           Puetz | 
                           
                           Biogen Idec Inc. | 
                           
                           PUP Hemophilia A |